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Who is the longest living ALS patient? Who lived for 50 years with ALS?

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Dr. Stephen Hawking lived for more than 50 years with ALS. Steve Wells is the world’s longest-living survivor of the disease. There is no cure for ALS and the average life expectancy after diagnosis is 2 to 4 years.

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However, some people live longer with the help of treatments and supportive care. ALS primarily targets motor neurons, the nerve cells responsible for transmitting signals from the brain to muscles throughout the body.

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ALS/ Image Credits: The ALS Association

The exact cause of ALS is unknown, but about 10% of cases are inherited, while the rest are sporadic. Research suggests a complex interplay of genetic and environmental factors involved in the occurrence of ALS.

The diagnosis of ALS is based on the signs and symptoms of upper and lower motor neuron degeneration, as well as tests to rule out other conditions.

The risk of developing ALS increases with age and is higher for men than women. ALS can affect any part of the body, but it often starts in the hands, feet, arms, or legs.


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